« Consignment | Main | The chia and the tyrant »

My place

I just stumbled across your blog, she writes. We’ve been here in this NICU for three months with our baby, and you write about the way we feel, in this hell.

Her words on the screen stare out at me and I am instantly humbled. Because, you see, I’d just been stealing a few moments with email and such, sitting here with a slice of toasted cinnamon brioche with too much butter and a piping hot mug of tea. And Ben is complaining in his bassinette, threatening imminent needfulness.

And I think to myself just a few more minutes… I haven’t been able to put him down all morning… there’s so much I need to get done…

Her message shatters this growing oblivion, brings me back to that desperate hole when I thought if only I could hear them cry through all this intervention, if only I could feel them pawing at me, to have them need me hungrily, to need skin and warmth and rocking in a safe place that belongs to us… I would sell my soul.

Thank you, Lisa.

Love and strength to you as you’re initiated into this unfortunate sisterhood. Even though you don’t believe it now, and even if you feel it shouldn’t, life will be some version of normal once again.

+++++++++++

The day I went into labour our contractor had broken ground on an addition of two bedrooms. Since then — since early labour, a crash c-section, two babies, a NICU stay, then one baby, then a mumps scare (don’t even ask) and now a newborn — we’ve finished the addition, replaced all the windows, gutted the kitchen, tore up and replaced all the floors, built an office, knocked down a few walls, stripped off the godforsaken exterior vinyl in favour of wooden clapboard… basically rebuilt the house. Much of it done DIY by the royal ‘us’ (Justin and my dad). And I’m working again.

And in other related news, I’m still married.

You don’t know your true capacity for upheaval until it’s tested.

In the hospital I said “let’s paint it pumpkin” in a cranky fit of anti-genericism and here we are now, living happily in a house that is ORANGE! because when you live in an ORANGE! house it’s not only invigorating but entertaining to watch all the mint-green and baby-blue and porridge-coloured retirees walk past with their golden retrievers and their tilley hats and their dropped jaws.

So now when we give directions to our ORANGE! house I say politely you just take a left at the cove then stay left at the fork in the road and then I take out the megaphone to say …THEN WATCH FOR THE ORANGE! HOUSE. THAT’S US.

+++++++++++

If I have to look at one more piece of paper, fill out one more form with NAME OF DECEASED: LIAM STEWART INGLIS printed on the top, I’m going on strike. Words I cannot even utter for what they refer to, like cremation, taunt me in certificate form, swing back and knock me between the eyes like boomerangs. Insult after insult in triplicate, injustice that demands bureaucratic ownership.

As his beloved twin sprawls-eagle on my chest like a dog with a bone, pinning me to the couch on this foggy afternoon, I am in my place.


Posted on Friday, August 17, 2007 by Registered Commentersweetsalty kate in | Comments53 Comments

Reader Comments (53)

I love the ORANGE! house, and I love that they took you seriously.

I think of you often.
August 17, 2007 | Unregistered CommenterKaren
dude, your place is awesome. quite cheerily pumpkin, and rather the same colour as our kitchen...clearly a sign of your good taste. should be easy to find...though alas, not this weekend for us. i am sad.

as for the forms...funny, for me, in our different circumstances, i clung to them at first. at least they were a chance to see his name, acknowledge him, acknowledge that i'd had a child. but now, now that i have a normal...it hurts to see those words in such close proximity to a name i loved and chose with such care and hope.

to Lisa...i hope that normal brings peace, in time.
August 17, 2007 | Unregistered CommenterBon
Even now, almost nine years later, a chill, no- THE chill, sweeps over my soul when I think back to our NICU days and the days after we lost our Gavin. Your writing cuts deeply and at the same time is a soothing balm. To share what you share and oh, how...

Thank you.



August 17, 2007 | Unregistered Commentermoodymama
I like the orange too. It will look so cozy when it snows. When does the snow start falling there? We get NO SNOW where I live now.

Sorry about all the bureaucratic BS you are dealing with.

Your posts always make me want to be a better mom....I was begging mine to go to sleep earlier (in my head). Now I can't wait for them to wake up.

Much love,ashley
August 17, 2007 | Unregistered Commenterashley in SC
I have absolutely no ability to even fathom how you managed to do what you did, with NICU and house expansion/remodeling/rebuilding at the same time. All kinds of idioms come to mind..."Glutton for punishment"?"When it rains it pours"?"The more the merrier"?"Shitstorm"?Okay, that last one isn't really an idiom, that's just my view of how life must have looked from your vantagepoint over the last 3 months. You wear it so well.The orange is bloody AWEsome.
August 17, 2007 | Unregistered CommenterTrasi
I love the pumpkin! As a woman whose living room was recently tangerine, I salute you. :)
August 17, 2007 | Unregistered Commentertulip
I love the orange, LOVE it.
August 17, 2007 | Unregistered CommenterAdria
I had an ORANGE! kitchen once. In fact, it was so ORANGE! that the color was called Life Preserver.Sweet, sprawled-eagle Ben.Sweet spirit-baby Liam.There are never enough kisses, are there?xoxo
August 17, 2007 | Unregistered CommenterLeigh
I also love my orange (ahem, Farmhouse Ochre) house too. More power to ya.
August 17, 2007 | Unregistered CommenterAmy
How do you make me teary without even trying?

We were in Parrsboro awhile back, and the misty afternoon picked me up and shook me, reminded me of why I should love it out here. Your backyard, your pumpkin house (I heart you even more now!) your beloved on your heart-the perfect world we glimpsed as we drove through the blueberry hills and fog. The perfect world Liam swirls in.

Can you send Justin to my house though? I have a deck to rebuild and a roof to do...
August 17, 2007 | Unregistered Commenterthordora
I like the orange too. And won't it be lovely in the fall when the leaves change!

Nice back yard as well.
August 17, 2007 | Unregistered Commenterslouching mom
I know you and your family have been weighted down with heavy, heavy things. I've been lurking - sometimes commenting.

But I have to say I giggled and wanted to compliment you on your use of all-caps and an explanation point.Something so simple rocked my world today.And I really needed it.Thanks, Kate.....See? You give so much to others in your trying times ;)
August 17, 2007 | Unregistered CommenterTabba
Your house looks great.

I saw the quadruplets born on the news, and they were in the NICU, and just seeing it made me cry.

I think about you when I think about our NICU stay, because I read about it first from you, and then experienced it.

I'm glad you're doing so well with Ben and work and your house and your husband. I wish you all of the best. You deserve it.

August 17, 2007 | Unregistered CommenterLily
Hooray For “Anti-Genericism!” I am celebrating with color, too. I have lived in apartments to long and now have bought my first home. I refuse to have a white wall in the place.
August 17, 2007 | Unregistered CommenterWen
I adore orange, and it's a VT color, so of course it rocks. My dining room is tangerine. I applaud your wonderful use of a great color!
August 17, 2007 | Unregistered CommenterDoris
You are such an amazing writer. Nine times out of ten, I am wiping away tears as I close my browser to go back to work. Thank you for your words and your perspective.
August 17, 2007 | Unregistered Commenterrebecca
"You don’t know your true capacity for upheaval until it’s tested."

So true. Thanks for the reminder.



And I'm diggin that organge.
August 17, 2007 | Unregistered Commenterninaandtom
orange.

brilliant...a great way to break out of normalacy. i love it.
August 17, 2007 | Unregistered Commentererin
Kate - What a chocked-full update. First, big hugs to you on the papers and the memories it all brings flooding in. I can imagine those are some emotionally-tough logistics. Liam is deeply rooted within you now; part of your family's soul. I am sure you feel it, as hard as it all still is. (Hugs) Sweet Ben, he sure sounds like he's doing well. Afternoon fussies are a sure sign of that.

To your reader, Lisa - I am so sorry. Surely this blog will bring you comfort and strength to you in your healing and moving forward. (Hugs)

And onto your ORANGE! house; it is super cool, and so warm and comfy feeling, just the corner of it you let us peek at. It reminds me of what a vanilla candle would smell like. Love that. Thank you, thank you for letting us see a glimpse. Congrats on having your home renovations complete. My husband and I do most work around here ourselves and the sheer feeling of accomplishment when all is said and done is great. Enjoy!

Do get some time for yourself amidst it all -

A funny aside: we were at our city's Irish Festival last night. It's my very favorite of all times; I look forward to it every year. Anyway, we passed by a booth about traveling to Nova Scotia. We stopped on in and chatted with a nice girl from Amherst. I think we want to take a trip there next fall; my husband and I are due for a solo vacation, and we want something cultural (Celtic! Yay!) and outdoorsy. It sounds like an awesome place. I have five magazine-length brochures to read up on tonight.

I think you are a lucky gal, indeed, to have a pumpkin abode and two healthy little guys, a wonderful and handy husband and family nearby. It puts things in perspective, of course, because all you have endured in the past few months is heavy, heavy life experience. But as Lisa helped us realize in her brief words, there is much to be thankful for, all around us, for all of us.

Cheers - have a great night -
August 17, 2007 | Unregistered Commenterjoanna
Hey, you forgot to add that during all that CRAZINESS you have been writing and sharing the most amazing posts with us all. Wowza. hope Ben keeps you pinned to the couch often so you can catch your breath.

Loving the orange.
August 17, 2007 | Unregistered CommenterD'Andrea
My MIL painted her lovely home in the woods pumpkin and while we all thought it delightful, the old people freaked out. Which is one of the reasons I love my MIL.

YAY for ORANGE!



August 17, 2007 | Unregistered CommenterElaine
"Pumpkin orange?!" I thought, when I saw it mentioned first. And then "Yeah, very cool pumpkin orange!", when I saw the picture.

Strength to Lisa - and to you!

Maybe all the bureacratic insensitive paperwork should be ritually burned, on a fire, in the backyard, with plenty of Halloween-like cut-out pumpkins with candles everywhere around, and pumpkin soup and pumpkin pie for dinner... ;)
August 18, 2007 | Unregistered CommenterSanne
I started reading your blog back when the twins were born. I was pregnant with my second son. I admire your courage, strength and the down right bluntness and honesty of the hell you were going through. At that time, I felt for you, but had not experienced anything like what you are going through. Eight days after my son arrived, I was suddenly living in a world similar to yours. They missed some congenital heart defects when I was pregnant and after birth and a routine doctors appointment resulted in an ambulance ride to the ER where he nearly died in front of me. He had heart surgery at 10 days old and we suddenly found ourselves in the PICU, having scans, talking about brain damage, quality of life, surgeries, everything. I started my own journal as yours seemed to help you voice your feelings, good and bad and I needed that. Thank you for sharing, you helped me cope with my sons illness by inspiring me to get my feelings out and accept them as they are.

August 18, 2007 | Unregistered CommenterWendy
If there was ever a person in this world who needed to paint her house orange, it is you. There is so much that you haven't been able to control. I hope you look at that delicious color every day and remember that you still make decisions and there are plenty to be made. Just as you brought joy to the color of the house, so will you bring it to the choices you make for your children.
August 18, 2007 | Unregistered CommenterRebecca M
Love the orange!!! Hope you guys were able to hook up with Jo & Ava at the market. We'd love to all get together (Lindsey & Tim as well) before Jo & Dave take off for Ottawa.Thinking of you often.Ally
August 18, 2007 | Unregistered CommenterAllyson
Kate I am glad that the email found you in that place of normalcy. The NICU is traumatising but once we get our babies home it is a good thing to be able to think of them as any other baby.
August 18, 2007 | Unregistered Commenterlisa b
Every time I visit you here, I leave so inspired. Your home (the little corner I can see) is beautiful, and so are you!
August 18, 2007 | Unregistered CommenterRobin
I love the colour so much. I think it will be especially inviting when winter rolls in.
August 18, 2007 | Unregistered Commenterm
When we were in the NICU, I said, "Let's paint it purple." Meaning our house, and in the end, we didn't have the courage to do it. I wonder if it's something about all that sterility that makes a mama long for the rich, jewel-tones of life? Pumpkin and purple and all else? Hooray for you for doing it...maybe one day I can tell people I live in a house the color of eggplant...
August 18, 2007 | Unregistered Commenterjennifergg
The orange is wonderful and warm - may the outside feeling of your house invade the inside too.
August 18, 2007 | Unregistered CommenterIrishGoddess
Wow - that is ORANGE! And good on you for getting rid of the vinyl.
August 18, 2007 | Unregistered Commentermaggie
i love the wood stacked up on the porch, looks very cozy. i don't know much about nova scotia, but this photo fits perfectly with the image i didn't realize i had in my head!

congratulations on getting your remodeling done, frankly i'm amazed! you husband and dad must be real a** kickers ;)
August 18, 2007 | Unregistered Commentersarah
Wendy, what a nightmare for you. I sincerely hope that your son has recovered - as you know, I know what it's like to see your child wheeled away for surgery.... so on that note, I wish for you that you're slammed with so many joyful moments in the next year and beyond, that the heart-wrenching ones fade, as they should.

Let us know how things go, will you? And I'm so glad that you wrote through it.
August 18, 2007 | Unregistered Commentersweetsalty kate
Dear Kate

Who not only rocks.. but kicks! Does it make any difference that for every antiseptic LSI on the forms there are 500 hearts of your readers remembering him when a drop of heavy rain makes them pause and listen for him.. Or a ray of sun reminds us of your words.. or the wind makes me ( and them ) think of how you said he travels now.. sprite-like and mama-wise

Making me everyday work through the moments with respect if not unfettered joy of this world.

(In that pumpkin shell may they keep you very well, dearheart. If they're serving cinnamon brioche sounds like pretty good.)
August 18, 2007 | Unregistered Commentermo-wo
Today was Nicole's 3rd birthday and the 3-year anniversary of losing her twin, Peyton. Every year I plan these HUGE theme parties for her. I think that we celebrate on such a large scale because I still can't believe that Nicole survived her traumatic birth and 11 weeks in the NICU. It sounds cliche, but she is truly a miracle. This compulsion I have to go overboard with Nicole's birthday parties could also be because it's so hard to think about the devastating loss we suffered on this day 3 years ago. The flurry of party-planning, prep and celebration masks this pain.

I bought a book for Nicole to read when she's older called "Always My Twin." http://www.trafford.com/05-0937

Here's the book description:

Always My Twin , for young children who have experienced the death of their twin sibling, is a book for any child whose twin died before birth, after birth or as a young child. The story is based on the author's own experience of losing a newborn twin daughter in 2002. The book tells the story through the eyes of a young girl whose twin sister dies shortly after their births. She begins her story with sharing the womb with her twin, the joy of her family anticipating the arrival of twins, the family's pain of losing one of their precious babies, and her own expressions of grief for her twin's death. The surviving twin also shares with the audience the precious ways in which she and her family remember her twin throughout the year. Included are interactive pages for the reader to respond to with pictures, identifying feelings and providing family information."

Ben might like this book when he gets older.

Love the orange! We had an orange bathroom the exact same color.
August 18, 2007 | Unregistered CommenterLisa George
"Stripped," "rebuilt," "gutted" - woman, you are speaking my language. I want more pictures! Only in Atlantic Canada (but especially in rural NS or NF) can you get away with an ORANGE! exterior. That's awesome.
August 19, 2007 | Unregistered CommenterJen H.
Yeah, you should post pics of your renovation!
August 19, 2007 | Unregistered CommenterBetsy
I love:

that you are still married, through all of this. You go.

that your house is orange. Love that color. I once had a YELLOW! house and it was my pride.

that you have your sweet baby on your chest, where all sweet ones belong.



August 19, 2007 | Unregistered CommenterAlly
Today I finally looked at your photos. Until this moment I had you in my mind as a woman with an immense loss, a poetic pen, and a huge heart. Seeing your photos I now see you as someone who would be in my circle of friends. Your poetic images (surprise!) of your family and flotsam of life could be images of my friends, my peeps here in the San Francisco Bay Area. Of course my friends are diverse in their looks, but there is a somethin' that is hard to explain- a style, a beauty, a perspective... that feels so familiar. Like if we met in a cafe we would connect and eventually I would learn of Liam and your blog and it would all happen in a different order. Don't worry, I'm not stalking, I'm just tripping on how small our blue marble is. On how many ways we can connect with people.

It's kind of like meeting a man and thinking, I could have dated him- heck, even like him a LOT, but here I am in my real life- and it's ok. So there are people out there in the world I will never really meet in person, but maybe know through their writing, or loosely though work, or whatever... and I think that gal could be my friend if we lived closer, had more time, whatever... but we don't.

I just wanted to say thanks for making the world smaller.
August 19, 2007 | Unregistered CommenterKim
HA HA! That orange, it makes me laugh in delight. It's wonderful!
August 20, 2007 | Unregistered CommenterNicky
I love it...the house. And every once in awhile when we get too comfortable with everything, it is good to be reminded how lucky we are.
August 20, 2007 | Unregistered CommenterJen
I don't post here often but remain an avid reader. Always. And your words enter me like fire and food both.Here's to orange houses and muddling through and the heart that can always hold more than we imagine, even as it breaks.love to you.
August 20, 2007 | Unregistered Commenterbella
i love that ORANGE! i used to have a wall-to-wall living room carpet the color of pumpkin before i moved to our current construction site. it brightened every day.

i remember that between-the-eyes boomerang ... three weeks after my mom died during her bypass operation, the hospital bill arrived. addressed to her. her name was on the letter. i hadn’t expected letters of condolence from that hospital, but i thought they would have had the sense to address this letter to my father. i stared at that hospital bill, ridiculously high figures, addressed to the person i had loved, who had died, and couldn’t believe it.
August 20, 2007 | Unregistered Commenterbine
Hi Kate, I just read through the very beginnings of your blog (up to Evan's birth)... it was so cool to see how much you and your writing style have changed yet remained the same. (plus ca change...) I got sent here by Dutch at sweetjuniper a few months ago and have been reading (intently, obsessively) ever since, but never went back to the beginning. glad I did :)
August 20, 2007 | Unregistered Commentermfk
Hello! I found your blog several months ago and was so touched by your life and your writing. I cannot even imagine how you have felt through all of this, and yet you share it beautifully. You have made me cry more than a handful of times with what you have written. I admire you and your strength and thank you for sharing what you do. I am sure it helps so many others. Thanks so much!
August 20, 2007 | Unregistered CommenterMieke
I used to wear a bright orange cordoroy jumpsuit (the cords helped differentiate me from a prison escapee or the local workmen- plus the sleeveless aspect). When my coworker had twins that is the color she painted their bedroom. I had to go model the jumpsuit for her partner who couldn't believe that anyone wore anything that ORANGE!!! I love how chirpy orange makes me feel.

I love it for your house, but I can't imagine it on my Vancouver special...

August 20, 2007 | Unregistered Commenterbubli
LOVE the orange. It says a lot about you too. I think I'd be disappointed after reading your blog for so long to find out that your house was beige or something boring like that. Your writing is so vivid and palpable afterall.
August 21, 2007 | Unregistered CommenterDear Gabby
I always read your blog; I never leave comments. I don’t want to contribute to the rubbernecking hordes foot printing all over your experience. I don’t want to be one of 126 vapid reactions to my worst nightmare. What could I say?

I have (almost) two-year old twins and when I read your posts I feel guilt. I carried my babies to term and although I didn’t “deliver” them, they were completely and utterly healthy as each was extracted from the slice in my gut: 7.8 and 6.10-pound welter weight girls.

But beyond the guilt, I take something more sinister from you. I’m glad your story is not mine. And when I resent them, almost hate their whining and clinging, I read your cautionary tale. To not have them would be worse than having them.

My favorite color is orange.
August 21, 2007 | Unregistered CommenterUnfit Mother
blessings and hugs to lisa...
August 21, 2007 | Unregistered CommenterHeather ~ Traub Tribe
Did you say you're *working* again? As in ? Doing grown-up, non-mommy work? On top of everything else you got going on?! Holy moly.
August 22, 2007 | Unregistered CommenterRachell

PostPost a New Comment

Enter your information below to add a new comment.

My response is on my own website »
Author Email (optional):
Author URL (optional):
Post:
 
All HTML will be escaped. Hyperlinks will be created for URLs automatically.