the spoils of coney island
A week or so before Liam died I sat with one of the neonatologists next to one incubator or another, chatting. He was quite animated on this day, smiling and gesturing as he marvelled at the mystery of his tiny charges.
You know how this branch of medical science began? Tiny babies, I mean, he said, a glint in his eye.
No, how? I asked.
Coney Island, he said. They had a display, a freak show, for lack of a better word. Perhaps one day a baby was born too soon and this experimentally-minded doctor said ‘Let’s see if we can keep this fetus alive outside the womb…’ and he managed it, and then again, and then they were all hooked, trying to get them to survive smaller and smaller, and nobody had ever seen such a thing. It was one of the most popular displays. But then they realized that they were helping people to live who wouldn’t have lived before. And then it became legitimate. Isn’t that a colourful beginning?
Absolutely, I said, smiling.
So much of what little we know about the human body is sparked by accident and ego and showmanship and passionate curiosity. Medical science can be a steamroller, often lacks in street smarts and faith, can be full of itself to the point of alienation.
It is what it is: the wild, untamed west.
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Ben is just Ben. Little, but less so every day.
To see full-term babies now, with this skewed perspective, is to see the unthinkably enormous, all of them future Andre-the-Giants.
Despite still being mobbed wherever we go he is just plain baby, positively robust on the brink of six pounds and two weeks shy of his due date.
Blood pressure and reflux meds, both more proactive than anything else. Three bottles per day of fortified breastmilk, super high-calorie turkey dinner. Productive gluttony for him, but a feeding farce for this pump-cranky mama, trying to juggle the accessories and sterilization and wheeshing of breast plus bottle plus pump.
Craving simplicity. Feeling increasingly mutinous.
Frequent weigh-ins, hospital visits, consults with specialists and physio and eye doctors. This is how it will be for at least the next couple of years until we've passed key physical and developmental milestones.
So far, all is well. Every time we go in there I feel like we’re being put to test (which we are) and every time I expect the other shoe to drop, for some newly discovered shortfall to rear its head. But still, he is a relatively straightforward boy. Never one to torment us with apneas or similar NICU drama, Ben's life to date has been spent sleeping and gaining, more or less.
His journey has been uneventful compared to that of his spirit-brother.
No oxygen nor feeding tubes nor monitors came home with us. Just him, glorious him.
We go sailing and he snuggles next to my chest and I tip forward to brush my lips back and forth across the silky down of his head, the softest thing on all the whole planet right this second, and it belongs to me. And his mouth is open, catching flies as he snores softly, each outbreath a tiny, blissful coo of content.
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Despite lacking any particular religious affiliation I’m struck with a sudden conviction that Liam has, most definitely, gone somewhere. He is looked after.
Perhaps the necessary ravings of a grieving mother, but I’m calm as this occurs to me. Feeling that the leaves and trunks and grasses and waves are all watching us as we pass, trying to tell us something. The most eerie sensation, this deliberate, conscious presence.
I know it not because I'm desperate, but because it's been revealed to me as a truth I didn't need to contemplate before.
When the sun dapples through the trees they whisper we have him. They may be all the sum of osmosis and photosynthesis and veins and nutrients but to me altogether they are one voice that breathes, knows, keeps.


Reader Comments (54)
Your words help me to believe that there is indeed sompleace else that we carry on after we are done here on this earth. I don't know why, how or where it exsists, but I too feel that it does.
good to hear that baby ben is doing well.
"We go sailing and he snuggles next to my chest and I tip forward to brush my lips back and forth across the silky down of his head, the softest thing on all the whole planet right this second, and it belongs to me."
if baby #3 makes its appearance in our home sometime in the next year it will be because of the above...
I'll also have to tell my Coney Island-obsessed husband about the preemies. What a weird place for a whole branch of medicine to start! And yet another reason not to close the place down and build a strip mall.
In the face of all you've had inexplicably taken, you have also been given a gift. It's beautiful that you are so fully aware of it even in its whisper-softness ... and that you share this gift so generously with all of us.
Because you write guilelessly, Liam's spirit has found its way into lives so distant from his earthly start. He carries on as we hover over screens and find a piece of his peace in you. What better way to explain the workings of a higher power than that?
when my grandpa (who was a track star in college) passed away, my mom said he was in heaven "pole vaulting with jesus". while it makes me laugh out loud whenever i think of jesus leaping over the bar, i do believe that souls are eternal and your sweet boy will always be yours and you are his forever-mama. i don't think god could create the life altering bond between a parent and child in this world if it wasn't intended to last into the next.
your writing is amazing, i just found your blog tonight. laughed out loud about the $300 jeans (oooohh, ahhhhh is right, they really do fit better, don't they?)
With that, I felt compelled to share this story with you - I hope you don't mind:A friend & her siblings wanted to spread their Father's ashes on top of a mountain that he loved to climb - none of them mountaineers, they recruited my husband & brother-in-law to 'lead' the way. It was a gruelling task, especially for the one holding the urn in his backpack - physically just a horrendous trek in its own rite. At the peak, my husband stepped aside to allow the family time to themselves and took his video camera out. One brother was leaning close to the edge struggling to take the urn out of his backpack with the siblings urging him to move along (using tones due to physical & emotional exhaustion, "Come on!") - finally he is able to open the urn and poor their Father's ashes over the edge of the mountain and it was almost like pouring the contents of a container out - uneventful - none of the siblings could see a thing but the bottom of the urn because all were sitting/standing too far back from the edge until a swish of the wind, from nowhere my husband says, scoops up their Father's ashes and brings it back up above their heads and with one last breath takes flight with the clouds - the 4 siblings all gasp and sigh simultaneously...it is the most beautiful footage.
I am so grateful to read you have found this with Liam.
And then one day she was gone from me, but not gone. Just somewhere else.
I'm an atheist, but I believe that she has continued-her atoms moving around me, in me, becoming. And it comforts me.
And I thank you.
Also. My dad always believed that plants are more like us than we think, even venturing out to say that plants may have feeling, sensation. Now remember, we are a family very unlike the neighbors around us. But...I like the thought of plants as our allies.
You have given me great perspective that has been much needed for me over these months, in addition to the weeks to come. And of course, the hours and weeks after whatever my birthing experience is to become.
thank you.
Your writing continues to be full of grace. I hope you receive as much comfort from your words as I do. They help me believe that there are powers greater than us. It's the only way to explain the horror you, and other parents like you, have had to live through.
What you said, so eloquently, is so much how I feel when I'm in the Maritimes, so far away from here in Montana. To me, your home-- the water, the trees, the coast, the rocks, the sky, and most of all, the people--have Monte's spirit within. I feel him there, and yet I just can't put it into words, but here you have, in your grief over your precious son, released for me emotions that are held so captively. Thank you. I feel guilty finding relief through your words; again, I don't want to take away from you. But thank you...
And by your persistent strength-- pumping, nursing, bottling. Phew. I am tired just reading about it. Keep up the good work. Your little Ben will thank you for it some day.
I know this isn't about me in the least, but thank you.
As for wee Liam's spirit. I definitely believe he is still here.
I don't even relate it to religious beliefs. I just have known far too many who've lost loved ones and connect with them in ways that are inexplicable.
No one is average and certainly not your sweet Ben. He carries Liam's strength with him always.
Straightforward is good. Very, very good.
kate, penny touched on this, and it's true, most religions have found a way to describe what you are experiencing. catholics would call it the communion of saints, or the holy spirit, both within all of us and around all of us, pulling us towards the great spirit that is our creator. the other great religions have other titles for it, explainations for it, reasons for it. ultimately, i'm sure our sweater-god doesn't mind how we try to understand this great mystery, but is pleased to share the gift of eternal creation with all of us who are loved beyond comprehension.
i'm certain those who have left their bodies exist afterwards, somewhere, in some form. the last few days when my mom went through her dying process, she went back and forth between this world and the next. it was an amazing gift to watch, and see how she interacted with those who came to bring her along on her journey. thanks for bringing that memory back for me, the peace she experienced and that i experienced, knowing she was in good hands, however we choose to label it. peace to you this evening, kate.
And your certainty that Liam IS - somewhere, somehow - I love that.
And thank you for sharing that photo of you with Ben over at flickr. I was hoping you would because I could imagine you nuzzling him but now I can picture it, and it's very, very sweet.
Thanks for sharing your life, your stories, and your children.
Love your recent pics!
Much love,ashley
Amen.
I don't belong to any church but I have believed in God since I felt a presence while singing hymns one day as a child. I can't explain it, I just *know* because I felt it.
If I could put these 2 things together in an eloquent manner I might have done as well as you did in this post. But I doubt it. Thanks for giving some shape of words to what I've been feeling for a very long time are truths.
I loved what you wrote about Liam....I am sure you are so right. He will be with his Momma and family for always.
Take care
At his weigh-in today he was 6 pounds 10 ounces (!), so we've been given the green light to stop this pumping bit and just feed him exclusively on boob-pure, unfortified milk. Easier for me, and better on his gut, too.
A big step!
And - hip hip HOORAY on your release from the milking machine- I'm going to have a celebratory glass of milk, toasting to you & Ben. ;)
In all of the confusion that I feel about God, heaven, and what exactly goes on behind the invisible curtains, it is so comforting to know that you feel and know that Liam is near. It's the only thing that makes sense in my big pile of theories.
xo
Your words about Liam were beautiful...that you feel him everywhere. He is your son for always and you his mama. As someone said earlier a parent's love has to continue on after our time here is over. I believe you will be with Liam again someday.
Much love,ashley
If this were not so, we would live in an unthinkable universe.
Best to you as you struggle with the pumps and the bottles and the feedings. It is awful. I am so glad that you have been given the go-ahead to go to breast alone. It sounds like it will be soooo much easier for you both.
What a beautiful, true sentiment.Thank you for sharing it.
http://www.neonatology.org/classics/silverman/silverman1.html#Fig12