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the spoils of coney island

A week or so before Liam died I sat with one of the neonatologists next to one incubator or another, chatting. He was quite animated on this day, smiling and gesturing as he marvelled at the mystery of his tiny charges.

You know how this branch of medical science began? Tiny babies, I mean, he said, a glint in his eye.

No, how? I asked.

Coney Island, he said. They had a display, a freak show, for lack of a better word. Perhaps one day a baby was born too soon and this experimentally-minded doctor said ‘Let’s see if we can keep this fetus alive outside the womb…’ and he managed it, and then again, and then they were all hooked, trying to get them to survive smaller and smaller, and nobody had ever seen such a thing. It was one of the most popular displays. But then they realized that they were helping people to live who wouldn’t have lived before. And then it became legitimate. Isn’t that a colourful beginning?

Absolutely, I said, smiling.

So much of what little we know about the human body is sparked by accident and ego and showmanship and passionate curiosity. Medical science can be a steamroller, often lacks in street smarts and faith, can be full of itself to the point of alienation.

It is what it is: the wild, untamed west.

+++++++++

Ben is just Ben. Little, but less so every day.

To see full-term babies now, with this skewed perspective, is to see the unthinkably enormous, all of them future Andre-the-Giants.

Despite still being mobbed wherever we go he is just plain baby, positively robust on the brink of six pounds and two weeks shy of his due date.

Blood pressure and reflux meds, both more proactive than anything else. Three bottles per day of fortified breastmilk, super high-calorie turkey dinner. Productive gluttony for him, but a feeding farce for this pump-cranky mama, trying to juggle the accessories and sterilization and wheeshing of breast plus bottle plus pump.

Craving simplicity. Feeling increasingly mutinous.

Frequent weigh-ins, hospital visits, consults with specialists and physio and eye doctors. This is how it will be for at least the next couple of years until we've passed key physical and developmental milestones.

So far, all is well. Every time we go in there I feel like we’re being put to test (which we are) and every time I expect the other shoe to drop, for some newly discovered shortfall to rear its head. But still, he is a relatively straightforward boy. Never one to torment us with apneas or similar NICU drama, Ben's life to date has been spent sleeping and gaining, more or less.

His journey has been uneventful compared to that of his spirit-brother.

No oxygen nor feeding tubes nor monitors came home with us. Just him, glorious him.

We go sailing and he snuggles next to my chest and I tip forward to brush my lips back and forth across the silky down of his head, the softest thing on all the whole planet right this second, and it belongs to me. And his mouth is open, catching flies as he snores softly, each outbreath a tiny, blissful coo of content.

+++++++++

Despite lacking any particular religious affiliation I’m struck with a sudden conviction that Liam has, most definitely, gone somewhere. He is looked after.

Perhaps the necessary ravings of a grieving mother, but I’m calm as this occurs to me. Feeling that the leaves and trunks and grasses and waves are all watching us as we pass, trying to tell us something. The most eerie sensation, this deliberate, conscious presence.

I know it not because I'm desperate, but because it's been revealed to me as a truth I didn't need to contemplate before.

When the sun dapples through the trees they whisper we have him. They may be all the sum of osmosis and photosynthesis and veins and nutrients but to me altogether they are one voice that breathes, knows, keeps.


Posted on Monday, July 23, 2007 by Registered Commentersweetsalty kate in | Comments54 Comments

Reader Comments (54)

I don't know which is more captivating- your words or your photos. I am in awe of the beauty you are able to express.
July 23, 2007 | Unregistered CommenterLinda
I have chills reading this, Kate - positve goodebumps of understanding, for some reason. I believe you, very much. Your Liam, he is there by all your sides. And Ben, so sweet in the photo you posted tonight, his wee head nuzzled on your chest as you sling him. I so love how newborns sleep like that. It's fleeting, as my own baby no longer will sleep on my chest, unless exhausted - she's just shy of five months, so relish in this time. I know you are. And on sailing: enjoy, enjoy. Hard to believe summer will be up soon. I look forward to your weekly updates and photographs, sharing with us your growing boys and the lovely views you encounter along the way --
July 23, 2007 | Unregistered CommenterJoanna
I second the goosebumpy feeling...wow. I'm typing this through teary eyes. It's fantastic to hear that Ben is just Ben, and to read about the peace of knowing that Liam is safe and watching over your beautiful family. I love the newborn snuggling, with the little bottom sticking up in the air...it just doesn't work the same with a 4-year-old, but dammit I try once in a while, even with Ben kicking and fussing. Fodder for his therapy sessions in years to come :)
July 23, 2007 | Unregistered Commenterandrea
I relish the moments when my little 4 year old girl lies on my chest and falls asleep. It does still happen once in a while - she's a mama's girl - but not as often as I'd like. Makes me kinda wistfully look back at her newbornhood and remember the times like that. Even then, even in near-coma-from-sleep-deprivation, I still could just sit in the rocker with her and there was nothing else in the world beyond us two at that moment.I'm glad to hear Ben appears to be drama-free. I think you've had enough for the time being.I also believe that the souls of the ones who have gone on, to whatever place that is, keep watch over us down here until we can be with them later. I can just feel it that way, without any sort of scientific explanation. It just is.
July 23, 2007 | Unregistered CommenterTrasi
I find such joy in hearing how average baby Ben is. There are times like this that average is such an extraordinary thing. May he continue to just sail along eating and sleeping, just being a baby, and bringing all of you so much hapiness all the while.

Your words help me to believe that there is indeed sompleace else that we carry on after we are done here on this earth. I don't know why, how or where it exsists, but I too feel that it does.
July 23, 2007 | Unregistered Commenterandrea
what comfort new found knowledge can bring. to all of us. just one of many truths that surface at the times in our lives that we need them to. indeed another testament to the fact there that is something bigger than what we see...

good to hear that baby ben is doing well.

"We go sailing and he snuggles next to my chest and I tip forward to brush my lips back and forth across the silky down of his head, the softest thing on all the whole planet right this second, and it belongs to me."

if baby #3 makes its appearance in our home sometime in the next year it will be because of the above...
July 23, 2007 | Unregistered Commentererin
I love your thoughts about Liam - absolutely beautiful. I have to agree, too. I'm atheist, but I feel as if people who have died are in the trees and the earth someplace, too, because even if you're dead, your energy must go someplace...

I'll also have to tell my Coney Island-obsessed husband about the preemies. What a weird place for a whole branch of medicine to start! And yet another reason not to close the place down and build a strip mall.
July 23, 2007 | Unregistered CommenterMelanie
thank you...
July 23, 2007 | Unregistered CommenterHeather ~ Traub Tribe
I can see the pictures your words make. Thank you.



July 23, 2007 | Unregistered CommenterLeann
So beautiful, Kate. I know the feeling you speak of, how fleeting and intangible, yet absolutely bedrock real. Liam's energy is with you and will forever be.
July 23, 2007 | Unregistered Commenterm
What you describe is what I (in my own what-makes-sense-to-me brand of mostly Catholic theology) like to believe is the presence of the Holy Spirit. Eerie, yes. Enveloping, yes. Unfaltering, oh yes. And just that simple: a peaceful presence. Its beauty is in its subtlety: that voice calls out assurances to us - always - but we'll only hear it when we are ready to listen for it.

In the face of all you've had inexplicably taken, you have also been given a gift. It's beautiful that you are so fully aware of it even in its whisper-softness ... and that you share this gift so generously with all of us.

Because you write guilelessly, Liam's spirit has found its way into lives so distant from his earthly start. He carries on as we hover over screens and find a piece of his peace in you. What better way to explain the workings of a higher power than that?
July 23, 2007 | Unregistered CommenterPenny
yes, your liam is surely looked after. i believe that, too.

when my grandpa (who was a track star in college) passed away, my mom said he was in heaven "pole vaulting with jesus". while it makes me laugh out loud whenever i think of jesus leaping over the bar, i do believe that souls are eternal and your sweet boy will always be yours and you are his forever-mama. i don't think god could create the life altering bond between a parent and child in this world if it wasn't intended to last into the next.

your writing is amazing, i just found your blog tonight. laughed out loud about the $300 jeans (oooohh, ahhhhh is right, they really do fit better, don't they?)
July 24, 2007 | Unregistered Commentersarah
Your writing, your experience, continues to floor me. So sad, so happy, reminding me always of life's precious balancing act. Thank you more than I can say properly.
July 24, 2007 | Unregistered Commentercarrie
Thank you for letting me into this intimate part of your life with such eloquence and honesty.

With that, I felt compelled to share this story with you - I hope you don't mind:A friend & her siblings wanted to spread their Father's ashes on top of a mountain that he loved to climb - none of them mountaineers, they recruited my husband & brother-in-law to 'lead' the way. It was a gruelling task, especially for the one holding the urn in his backpack - physically just a horrendous trek in its own rite. At the peak, my husband stepped aside to allow the family time to themselves and took his video camera out. One brother was leaning close to the edge struggling to take the urn out of his backpack with the siblings urging him to move along (using tones due to physical & emotional exhaustion, "Come on!") - finally he is able to open the urn and poor their Father's ashes over the edge of the mountain and it was almost like pouring the contents of a container out - uneventful - none of the siblings could see a thing but the bottom of the urn because all were sitting/standing too far back from the edge until a swish of the wind, from nowhere my husband says, scoops up their Father's ashes and brings it back up above their heads and with one last breath takes flight with the clouds - the 4 siblings all gasp and sigh simultaneously...it is the most beautiful footage.
July 24, 2007 | Unregistered CommenterMelissa!
Though I dare not suggest I know even a scintilla of your loss, I lost my grandfather in February. These last months with the great granddaughter he didn't meet playing alongside the one he did, I know with an unfamiliar certainty that there is more, that he is more than dust and memories. He is here and there. I didn't know this before, and though my ache for him threatens to break me, still there is a glow that is him, evermore.

I am so grateful to read you have found this with Liam.
July 24, 2007 | Unregistered Commenteramanda
Your words are very sweet, delicious almost. The thought that Liam is with you in everything you pass is just beautiful. I wish I could put the words together to tell you how touching this post is ... it makes me appreciate life, all of it - my son, my husband, and our surroundings.
July 24, 2007 | Unregistered Commentertanya
For a long time after my mother died, I could feel her around me. I'd wake from dream smelling her, feeling her arms covering me.

And then one day she was gone from me, but not gone. Just somewhere else.

I'm an atheist, but I believe that she has continued-her atoms moving around me, in me, becoming. And it comforts me.



July 24, 2007 | Unregistered Commenterthordora
Kate. Through your blog, you have assuaged my fear of death.

And I thank you.

Also. My dad always believed that plants are more like us than we think, even venturing out to say that plants may have feeling, sensation. Now remember, we are a family very unlike the neighbors around us. But...I like the thought of plants as our allies.
July 24, 2007 | Unregistered CommenterHMFT
I can't even imagine what you have gone through. But, your words are miraculous. You put into words so much feeling, love, and hope. You have given Liam life beyond what he had.
July 24, 2007 | Unregistered CommenterDawn
I have enjoyed reading your words through my pregnanct, which wil be my second boy due in August 27th.

You have given me great perspective that has been much needed for me over these months, in addition to the weeks to come. And of course, the hours and weeks after whatever my birthing experience is to become.

thank you.
July 24, 2007 | Unregistered Commenterliz
That soft downy hair. Oh I did the same exact thing with my boys.

Your writing continues to be full of grace. I hope you receive as much comfort from your words as I do. They help me believe that there are powers greater than us. It's the only way to explain the horror you, and other parents like you, have had to live through.
July 24, 2007 | Unregistered CommenterMammaLoves
Oh Kate, I'm overwhelmed by your thoughts today...I try not to diminish your experience by sharing mine, but I just can't help it today.

What you said, so eloquently, is so much how I feel when I'm in the Maritimes, so far away from here in Montana. To me, your home-- the water, the trees, the coast, the rocks, the sky, and most of all, the people--have Monte's spirit within. I feel him there, and yet I just can't put it into words, but here you have, in your grief over your precious son, released for me emotions that are held so captively. Thank you. I feel guilty finding relief through your words; again, I don't want to take away from you. But thank you...
July 24, 2007 | Unregistered CommenterYvette
Kate, I am baffled and amazed by the beauty of your writing about Liam.

And by your persistent strength-- pumping, nursing, bottling. Phew. I am tired just reading about it. Keep up the good work. Your little Ben will thank you for it some day.
July 24, 2007 | Unregistered CommenterAlly
I've been out here, thousands of miles away, reading your site for a while now. I just had my second child 4 days ago. It may sound absurd, since I don't know you in the non-virtual world, but I feel Liam's spirit in the intense love I have for my children. He is somehow present there, in that dense and mysterious space between mother and child, reminding me of how precious my boys are. Even in the midst of tantrums and sleepless nights, to bury my head in their smell is to feel Liam, and all spirit-children, in my life. Thank you for sharing him with us.
July 24, 2007 | Unregistered CommenterErin
I love what you wrote about the "deliberate, conscious presence". You hit on the head something that I really needed to hear today.

I know this isn't about me in the least, but thank you.
July 24, 2007 | Unregistered Commenterschmutzie
After we lost our daughter, I was no longer afraid of death because I knew I'd be with her then.In the long, lonely nights after we came home from the hospital without her, I would stand at my kitchen window and look up thru the bare trees at the moon, and I really do think that her little spirit was (is) out there somewhere, waiting.
July 24, 2007 | Unregistered Commentermolly
Fascinating story about Coney Island.

As for wee Liam's spirit. I definitely believe he is still here.

I don't even relate it to religious beliefs. I just have known far too many who've lost loved ones and connect with them in ways that are inexplicable.

No one is average and certainly not your sweet Ben. He carries Liam's strength with him always.
July 24, 2007 | Unregistered CommenterJennboree
"He is a relatively straightforward boy."

Straightforward is good. Very, very good.
July 24, 2007 | Unregistered Commenterslouchingmom
As always, your words touch down to the very core.I am so very glad that you can feel Liam as you drift over the Earth and feel the wind upon your face and feel the sun upon your skin and hear the tree's whispers.How comforting indeed.
July 24, 2007 | Unregistered CommenterAshlea
Perhaps it's the necessary ravings of a grieving husband, Kate, but I think you're right about Liam being everywhere. I feel that Anna's there too, even 361 days later.
July 24, 2007 | Unregistered CommenterJason Dufair
oh sweet ben, you are a quiet peace warrior with your silent spirit-partner liam right there with you. you keep on gaining and growing and we'll all pull you through as you grow. no mama is anything but proud of a pnut, not this mama that's for sure.

kate, penny touched on this, and it's true, most religions have found a way to describe what you are experiencing. catholics would call it the communion of saints, or the holy spirit, both within all of us and around all of us, pulling us towards the great spirit that is our creator. the other great religions have other titles for it, explainations for it, reasons for it. ultimately, i'm sure our sweater-god doesn't mind how we try to understand this great mystery, but is pleased to share the gift of eternal creation with all of us who are loved beyond comprehension.

i'm certain those who have left their bodies exist afterwards, somewhere, in some form. the last few days when my mom went through her dying process, she went back and forth between this world and the next. it was an amazing gift to watch, and see how she interacted with those who came to bring her along on her journey. thanks for bringing that memory back for me, the peace she experienced and that i experienced, knowing she was in good hands, however we choose to label it. peace to you this evening, kate.
July 24, 2007 | Unregistered Commenterpnuts mama
So glad to hear that Ben is thriving. Can he drink straight from the breast?
July 25, 2007 | Unregistered CommenterRebecca James
sorry - gosh - hope that doesn't sound at all judgemental - just wondering, really. Must be an enormous amount of work to pump all of his milk.

And your certainty that Liam IS - somewhere, somehow - I love that.
July 25, 2007 | Unregistered CommenterRebecca James
I believe Liam is everywhere, too. In fact, I keep my eye out for him down here in Massachusetts. Thank you for sharing him with us.

And thank you for sharing that photo of you with Ben over at flickr. I was hoping you would because I could imagine you nuzzling him but now I can picture it, and it's very, very sweet.
July 25, 2007 | Unregistered CommenterKaren
Lovely post. And good on you on the pumping. It sucks, really and truly, but someday he'll learn to nurse and it'll be great.
July 25, 2007 | Unregistered Commentermaggie
The medical, the everyday, and the spiritual, all come together. This is so beautiful and perfect that I think I'm going to have to take a break from writing...but not from thinking and feeling, like you made me do today.

Thanks for sharing your life, your stories, and your children.
July 25, 2007 | Unregistered CommenterCrystal
I remember pumping and nursing and bottle feeding Elizabeth. She was too weak to nurse exclusively when she came home from the hospital as well. It was exhausting...I remember aching for simplicity too. I'm not sure how long I had to do things that way....maybe 1 to 1 1/2 months? Sounds like little Ben is growing leaps and bounds with Mama's Milk. I'm glad to hear all his appointments are going well. My twins are one now and are still taking reflux meds. I'm hoping at 15 months we can try to take them off of them.

Love your recent pics!

Much love,ashley
July 25, 2007 | Unregistered Commenterashley in SC
Regardless of religious beliefs, life with its plethora of emotions makes us spiritual beings of sorts, connected to the universe around us. I believe Liam's spirit is everywhere now too, as he evolved into an endless source of light. He is energy and as so his presence can be felt and sensed forever.
July 25, 2007 | Unregistered CommenterGabs
"I know it not because I'm desperate, but because it's been revealed to me as a truth I didn't need to contemplate before."

Amen.
July 25, 2007 | Unregistered CommenterKelly
At times I am still open-broken-hearted over losing my grandmother when I was 15 (1981). In the movie "What Dreams May Come" there is a scene where Robin Williams' character tries to hug his wife who is at a grave. When this makes her crying turn to howling with grief he finally "lets go" and moves on. As I watched that scene I was struck by it. I wonder if all those times I have howled with missing her were because she was trying to hug me and make things better for me? And does that not happen so much because she moved on?

I don't belong to any church but I have believed in God since I felt a presence while singing hymns one day as a child. I can't explain it, I just *know* because I felt it.

If I could put these 2 things together in an eloquent manner I might have done as well as you did in this post. But I doubt it. Thanks for giving some shape of words to what I've been feeling for a very long time are truths.
July 25, 2007 | Unregistered CommenterKYouell
Hooray for darling almost six pound Ben!

I loved what you wrote about Liam....I am sure you are so right. He will be with his Momma and family for always.

Take care
July 25, 2007 | Unregistered CommenterTara-Lynn
To those who have been curious, a clarification: Ben does breastfeed straight from the horse's.... ahhh, from me. He's always been a fantastic nurser. But for the purposes of getting some high-calorie feeds into him, the hospital had been making me pump and fortify my breastmilk, bottle-feeding him for three of many feedings per day.

At his weigh-in today he was 6 pounds 10 ounces (!), so we've been given the green light to stop this pumping bit and just feed him exclusively on boob-pure, unfortified milk. Easier for me, and better on his gut, too.

A big step!
July 25, 2007 | Unregistered Commentersweetsalty kate
The wild west- ugh, ABSOLUTELY.

And - hip hip HOORAY on your release from the milking machine- I'm going to have a celebratory glass of milk, toasting to you & Ben. ;)

In all of the confusion that I feel about God, heaven, and what exactly goes on behind the invisible curtains, it is so comforting to know that you feel and know that Liam is near. It's the only thing that makes sense in my big pile of theories.

xo
July 26, 2007 | Unregistered CommenterEve
Congrats Kate! Glad you can put the pump in the closet....or trash:) Th simplicity you longed for has come.

Your words about Liam were beautiful...that you feel him everywhere. He is your son for always and you his mama. As someone said earlier a parent's love has to continue on after our time here is over. I believe you will be with Liam again someday.

Much love,ashley
July 26, 2007 | Unregistered Commenterashley in SC
What a beautiful post. I, too, feel it. And I know that hope is a dangerous thing, but maybe there is no other shoe, to drop. Maybe there is just life, now, and it's living. I will hope that, for you, because I can.
July 26, 2007 | Unregistered Commenterjennifergg
Yay! no more *boobie-sucking machine!*
July 26, 2007 | Unregistered CommenterYvette
I am sure that Liam is somewhere peaceful, being looked after. There is not a doubt in my mind. Heaven, perhaps. Peace, definitely. Fear not, sweet mama. Your boy is being comforted in love.

If this were not so, we would live in an unthinkable universe.

Best to you as you struggle with the pumps and the bottles and the feedings. It is awful. I am so glad that you have been given the go-ahead to go to breast alone. It sounds like it will be soooo much easier for you both.
July 26, 2007 | Unregistered CommenterWhyMommy
Kate, this is beautiful. Your writing always inspires me so.
July 26, 2007 | Unregistered CommenterJen
Oh Kate,

What a beautiful, true sentiment.Thank you for sharing it.
July 27, 2007 | Unregistered CommenterAnna
Kate: This article may be of interest to you:

http://www.neonatology.org/classics/silverman/silverman1.html#Fig12
July 27, 2007 | Unregistered CommenterSuzanne

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