Communion
I’ve had to relay the same facts, the same update so many times now I can do it sleepwalking.
Yes, it’s been a rough go. We’re drained but we’re okay. The more we find out about just how injured he was, the more we can reconcile that he couldn’t stay with us. We’re just trying to focus on Ben, and Evan, and thank goodness we’re busy. I don’t know what we’d do if we weren’t busy.
A strange feeling, this claustrophobic paranoia. People we know spot us and instantly think, there they are, the ones whose baby died. Imagined or not, I see it in their eyes.
I spent much of Liam's life wandering hospital hallways and deserted utility closets and unoccupied pumping rooms puffy and red-eyed, with rat's nest hair. More tears, terror, depression and panic than I've ever felt in what I now know was our excessively fortunate life.
Now he's gone and I am tapped of grief, exhausted for the time being. Shoulders unclench to music in the car, laughing at a joke, and I am instantly ashamed. In ordinary conversation I slip into recalling the clinical highlights of the most difficult night of our lives, which happened just over a week ago. Then I walk away feeling callous and cheap.
Alone, my eyes close and I am flooded with memories of the first night we lost him, when they were born. And the second night we lost him, six weeks later. I relive it all, all-senses snapshots. The smell of antiseptic, the chilling squirt of morphine at the point of their beginning and at his end.
I’m filled with horror as though contemplating some unimaginable trauma that happened to someone else. How can they bear it without falling apart?
That’s when I realize it: I am numb.
++++++++++
Our nurse gave it to us as she took his body away. A ceramic heart on a string with a cutout — a hole in the heart — and the missing piece to stay with Liam. So we’d always be connected, she said. So we’d always know the other half is with him.
It felt spontaneous and intensely personal. I’ve had it around my neck every since, shortened so that the heart rests in the same spot where Liam’s head was, that night.
Searching for shared experience tonight with Bon, my eyes rested on a photo of her Finn’s urn. I stopped, startled with recognition, looked closer. Around the neck of the urn rests a little heart — the centre of the empty one given to her the night he died.
It’s like walking in on a lover with another woman. It dawns on me: I’ve simply been cycled through the steps the hospital takes when a mother loses a baby.
Who am I to say it's any less genuine because it's protocol? Our nurse is a wonderful person, just doing her job. And doing it so well, as they all do, that we’re deeply moved and grateful.
But now I am an idiot, fingering this bureaucratic trinket every time I'm sad for Liam. In some boardroom they decided that this ceramic hole-in-heart would be line item number twelve on the Infant Mortality Response Strategy.
Suddenly I want to take it off. Struck that a trinket will not make me sane, or calm, or fulfilled. Nor connected in any physical way to my lost son. Pissed off that it can't. Resentful, feeling positively curd-headed for falling for it. But then panicking as the spell evaporates and the man behind the curtain is revealed.
F--k! If this heart thing was just a contrivance, what am I going to do if I take it off? How will I have Liam with me, if it's not this?
All over again, it’s true. He is gone. My stomach turns, rattled.
Desperate for something to grasp onto when I feel like I'm drowning, but not wanting it to be line item number twelve from the gift shop next to the Tim Horton’s in the lobby of the building where he died.
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Some threads, tugged on, don't amount to much, don't compromise the whole. Others, without warning, leave me an instantly unravelled heap on the floor.
I've thought about this now, this trinket. It's not so much a link to Liam. It's a token of sisterhood, a communion of lost babies. A link to other mamas who fell into and climbed out of this pit.
This is me now. Branded like all the others before me, living with a hole in the heart. But nonetheless living.


Reader Comments (83)
Peace and love to you and your family. You are an amazing woman and I admire your strength and honesty.
Lisa: yes, ambivalence, true.. but I haven't taken it off. It still speaks to me. And you're right. I have no doubt this whole course of events - baby loss - is very hard on the nurses, who are incredibly warm-hearted souls. No matter how seasoned they are, it can't be easy on them. We love and appreciate them all, so much, for standing with us.
Please know I didn't mean to imply that you thought the nurses didn't care, deep apologies if it came out that way. I meant to express that even though it's a stock item, every one I'm sure is as special to them as the baby it represents. Special wishes to Evan, I hope he's doing okay.
I understood nothing of loss at the time, but I did my best to help her grieve.
The day my beloved father died in a terrible way, this woman came to my parents' home. She handed me a smooth, heart-shaped stone.
I was in shock and didn't realize until later what she'd pressed into my hand.
A purple heart. A talisman she'd carried since she lost her boy, Colin.
When I feel sadness creep up on me, I palm the stone and make it warm in my hands.
I think you are right; a small token that links you to a sisterhood no woman should have to be part of. Nonetheless, it is a symbol of how others walked a hard path and emerged in a new light.
I hope this is true for you. I hope with all my heart that you come into the light, with Liam's soul wrapped around you like a beautiful, shimmering cape.
I'm so sorry, Kate.
I wish you all the strength you need to endure this time, and a peaceful place waiting for you down the road. Like so many others I thank you for sharing all of this with us, it is a sisterhood and you are not alone.
Shalom.
And as such, as you've come to realize, it connects you not only to Liam but to the other women who have suffered a similar loss. Would that no one had to suffer that.
I know it's not a very good analogy, nor very well explained. Sometimes the right word just don't come, but I do hope you understand what I'm getting at. And you probably already do, anyway. Oh how I wish we were chatting over cookies and tea, instead.
Amen girl... so true...I wake up everyday living, breathing, starting my day, saying good morning to the flowers, the trees, the air, all of which remind me of my son. Michaels gone now, but he will forever hold my heart, even through all the laughs, and moments of forget.
Your heart wont break forever, I promise.
i'd drop one more 'hang in there' on you, but after following your journey, i'm certain that you will, as best as a person can.
I think your beautiful words have taken a chink out of all of our hearts.
Tears and love from Austin.
the little heart here on my side of the puddle now brings Liam's face to my mind, just as much as it does Finn's. they expand infinitely, i guess, those little ceramic hearts.
ours are identical, yes. yet each one stands in for an individual story, a little soul...each heart no more the same or interchangeable than Liam and Ben. i know you know that. and still i am so sorry for the shock of realization, and so glad that at least there is communion in it for you. we with the holes in our hearts...i like that. it's beautiful. it reminded me to go and touch my own ceramic talisman, and remember.
i feel sorrow that this communion has come to pass...that anyone has a heart like this, at all.
and yet, you're right, you will climb. and we all, out here, will hold your hands where we can. and thank you for letting us.
I am a doula and had a client who shared similar feelings you are experiencing about the mementos the hospital gave her after her newborn daughter death.
She choose to memorialize her daughter with her motherhood with two gold charms on a necklace that she purchased on her own, it had two beautiful little girl charms. She bought two little girls charms one for her living daughter and one to remember her deceased daughter. She said this gave her the relief from all the intuitional mementos she had to remember her daughter by that was from the hospital. Framed in a lovely shadow box we bought at pottery barn were some of the mementos from the hospital.
We too did a shadow box for Nicole, the twin who survived. We put one of her first diapers in there. People can't believe how impossibly tiny it was!
Liam's story, his strength and spirit, your strength and spirit, your beautiful writing -- they blend together to form a whole that leaves me dumbfounded.
Just: lots of caring from here being sent your way.
The How many children? question is terrible, and rattled off so casually everywhere. So often I've paused, wondering what, really, is the right thing to say. Lately, I include my son in heaven, and if they continue to ask for details, reveal that he's no longer alive. I used to worry about making the question asker feel bad, but heck, it *is* a personal question, no matter how common.
Your heart pendant is a treasure. It doesn't matter how many are produced, and how many given out as standard procedure. I've been deeply moved by the poetry on sympathy cards, cried over cherub statues, and will always keep the beautiful (and horrible) last hand and footprints the hospital made. Your heart pendant was the idea that a real person had, who wanted to comfort grieving parents, and convinced the hospital to give them out. Maybe he or she was a grieving parent, too. It's a gift from that person to you.
I'm so very sorry for the pain you and your family are in. You're an inspiration, and your writing is beautiful.
Be angry. But not guilty. Life must return. And it will.
I hope you find the balance shifting soon to where you can have moments in your day where laughter feels good again.
like the little hospital binkies newborns get- we all have them and they are ugly and generic, but you know we all keep them forever to remember the personal experience tied to the first time we got it, not because it was a personal gift of the moment, but it's a token of the moment filled with thoughts you attach unique to you and Liam.
I am glad you have it, that there was a line of thought in the process even if it feels forced and robbed of personal touch.
grief is a bond that i loathe to share with anyone, yet it's only those who have walked through it who have any idea. i remember standing in the room during my mom's wake and looking at the people there with disbelief that i wasn't one of them, stopping by, briefly sad, then getting back to my regular life again. completely incredulous that for all the times i had been at a funeral, i really had no idea what it was like to lose and to mourn. i was so angry at these people who got to go on with their lives after mine was never going to be normal in that way again.for years i couldn't throw away any scrap of paper that had her writing on it, anything that had been in her hands. give yourself the time you need to figure out what is meaningful and what is a trinket, and be gentle on yourself, kate. take good care of each other and ride the waves together, holding hands tight when the current catches you in a riptide. much love and continued prayers for peace to you all.
grief is so intensly personal and i always feel such a loss to say anything here but i remember how much others' words filled my heart and so i try in my clumsy way to send you some love and care ... warm hugs to all of you. xox
I'm overwhelmed by this legion of mothers, reaching out in support and love, joined together in a war against tragedies and broken hearts.
That token, that little heart, really is something to hold onto. It's as real as a mantra, a deep breath, or a figurine to focus on to get you through a contraction. It's something real.
Everything you're going through - the numbness, the guilt - all seem like the only way to cope with this. I'm amazed at how clearly you can define it all during this storm, and how every time the rug has been ripped out from underneath you, you get up, and continue to give - to your boys, and to all of us. I love how you said before that, ultimately, your joy would define you, not your sorrow. You're such a gift.
Another friend from the ether, listening with love and hope,
Eve
I wish I could be there to pick you up off the floor. You are an amazingly strong woman. Be sad when you are sad, but let yourself laugh too.
Much love,ashley
I can't say that I have experienced the loss that you have but I have experienced loss and the mind numbing, body altering grief/numbness that goes with it. Years later, I realize that the numbness was me taking care of myself. It melted away when it was time. The laughing and smiling when they occurred were reminders that eventually I would be capable of feeling once again. But I confess, I am a little gentler, a little more cautious, and enjoy even the smallest things so much more than I thought possible - and feel the sorrows more than I though possible as well. I was forever changed and a very unwilling participant on the journey.
Stay strong Kate & Justin. I hope you find a talisman that you can hold close to your heart that is Liam - and perhaps over time the talisman will change.
Take good care of yourselves and your family.