Envy for the mundane
Reading blogs like this are like slowing down for a car crash..
True. I'd rather just read about someone normal…
I know what you mean. I was like you, once.
I'd love to tell you about how Evan makes fart noises underwater now, in the bath, with a squeezy toy. And then looks up, beaming, to declare: "Dat's RUDE!"
I wish that's all I had to say.
But those reports are trumped by what else is going on. At this moment, 12:33 AM, a neurosurgeon is putting in a shunt to relieve pressure on Liam’s brain from excess fluid caused by hydrocephalus.
Taken away again to the operating room by a faceless crew of masked blue people. I appreciate and resent them, all at once. Or perhaps better put: resenting what they stand for, the fact that we have to be here at all.


Reader Comments (27)
Prayers and hugs.
Make a sound wave to share of Evans latest discovery ... I am sure it's as funny as it is "rude" *smiles*
I love the story about Evan. I have a feeling he is going to be quite a hit at school!
Eve
You write what no one else in your situation could put into any words at all.
Your writing is graphic and authentic. I appreciate how you can honestly admit feelings and thoughts that I doubt any of us could if we were in your place
I cannot even put into my own words how I admire you for including us in a place where everything is unknown and you have hope and rage at the same time, as well as a place where you have to carry on the way it was before for your son Evan.
Thank you ... and I include my own blessings, prayers, crossed fingers, everything that everyone else reading your blog wishes and hopes for you and your family.
My prayers and love are being sent to you ...
Wishing you the best and marveling at how articulate you can be. The slowing down to see a car crash analogy is right on. I often feel a bit guilty about reading your blog - I can relate in so many ways - but it's your crisis - not mine.
Again - hoping for positive news.
I suppose normal will readjust for you to fit your situation at some point, Kate. From more than 2 years since my own personal earthquake I can say that new-normal still sucks really, really hard sometimes. Especially coming out of sweet, old-normal dreams. But it's mostly... normal.
Thinking of you and wishing for the very, very best outcomes for every single one of you.