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Envy for the mundane

Reading blogs like this are like slowing down for a car crash..

True. I'd rather just read about someone normal…

I know what you mean. I was like you, once.

I'd love to tell you about how Evan makes fart noises underwater now, in the bath, with a squeezy toy. And then looks up, beaming, to declare: "Dat's RUDE!"

I wish that's all I had to say.

But those reports are trumped by what else is going on. At this moment, 12:33 AM, a neurosurgeon is putting in a shunt to relieve pressure on Liam’s brain from excess fluid caused by hydrocephalus.

Taken away again to the operating room by a faceless crew of masked blue people. I appreciate and resent them, all at once. Or perhaps better put: resenting what they stand for, the fact that we have to be here at all.


Posted on Tuesday, June 12, 2007 by Registered Commentersweetsalty kate in | Comments27 Comments

Reader Comments (27)

Sending wishes for a safe surgery.My baby (2 at the time) had hydrocephalus as well. Different reason entirely, scary as hell, none-the-less. It was agony. The 11 hour surgery, the 2 year ordeal, the almost 6 years of waiting for another time bomb to go off ever since.But the moments in between? The ones you experience for 10 blissful seconds upon awakening in the morning? They get more frequent, they get longer. And they are good. I wish this for you and all your beautiful boys. As a mother i relate all to well. i thank you for your honesty and i pray for you all.
June 12, 2007 | Unregistered CommenterAshlea
Surgery never gets easier for me. I fear the anesthesia most of all. And how can we let them crack our son's chest open again? Yet I know if we have to we will let them. It is hard to just hand your child over, so hard, but what else can you do but bear it? Honestly, I'm a very "live in the moment" type of person and my husband isn't. I think it must be harder on him, yet he comes through it too.

Prayers and hugs.
June 12, 2007 | Unregistered CommenterKYouell
Praying for Liam and you tonight... for him to be strong, for you to be calm. Sending you both some of my own "mamalove" as you so beautifully put it...
June 12, 2007 | Unregistered CommenterGabs
hang in there. it's a lonely moment, a lonely walk. but the colour will come back to life and the sun will shine again - in the meantime, keep holding his little paw in your heart.
June 12, 2007 | Unregistered Commentercaith
I'm praying tonight for you and for Liam, and for his Doctors and caregivers. It's okay to feel how you do, we all feel it with you.

Make a sound wave to share of Evans latest discovery ... I am sure it's as funny as it is "rude" *smiles*



June 12, 2007 | Unregistered CommenterNancy
Very,very best wishes to Liam for a safe and successful operation. My husband Russell (who is now hoping as fervently for you and your boys as I am) and I continue think of you and check your blog every day.

I love the story about Evan. I have a feeling he is going to be quite a hit at school!
June 12, 2007 | Unregistered CommenterLiz
i was just re-reading your blog from today and realized you posted. kate, ed and i are praying for you guys right now! "slowing down for a car crash..." brutal and yet, right on. never want to witness it, but in doing so - gives you the chance to plead with that sweater-wearing God of yours for their lives, for comfort and for their ulitimate safety! may He hug and hold you tight tonight! and, love LOVE that evan figured out how to fart in the bathtub - it honestly only gets funnier! ;)
June 12, 2007 | Unregistered Commenterheather ~ Traub Tribe
That Evan, what a Ladies Man he's going to be... and how funny that little girls are just as charming... up late and thinking of you - sending you lots of mamalove and wishes for successful surgery.
June 12, 2007 | Unregistered CommenterRachael
I'm thinking of your Liam tonight, and wishing him strength and healing.Love to you and your sweethearts,

Eve
June 12, 2007 | Unregistered CommenterEve
Your raw, intense, first-class writing so vividly describes what you are going through.

You write what no one else in your situation could put into any words at all.

Your writing is graphic and authentic. I appreciate how you can honestly admit feelings and thoughts that I doubt any of us could if we were in your place

I cannot even put into my own words how I admire you for including us in a place where everything is unknown and you have hope and rage at the same time, as well as a place where you have to carry on the way it was before for your son Evan.

Thank you ... and I include my own blessings, prayers, crossed fingers, everything that everyone else reading your blog wishes and hopes for you and your family.



June 13, 2007 | Unregistered Commentersue houser
It never gets easier to hand your child over. While they say "we'll take very good care of him" - it's not THEIR child they're operating on, it's yours.

My prayers and love are being sent to you ...
June 13, 2007 | Unregistered CommenterTricia
My best wishes to Liam and to your whole family. Take care.
June 13, 2007 | Unregistered CommenterJess
If I could I would hug you and sit up with you all night. Hang in there, sending positive vibes right to you.
June 13, 2007 | Unregistered CommenterHenna
Oh dear, I hope all went well with his surgery! I am a new reader and think about you and your boys constantly!
June 13, 2007 | Unregistered CommenterSarah
I'm here through OSMH, and praying for your family. xo
June 13, 2007 | Unregistered CommenterKaren
Crap Kate. I didn't want to read this from you - I am near tears thinking about Liam. I so wish you were not in this place right now. You are a raw, beautiful soul; your words are full of life and feeling and it's all too easy to understand the pain you are in. Please let us know how he is doing today, Kate. I won't be thinking of much else, honestly. Prayers, continued, from WI, USA*
June 13, 2007 | Unregistered CommenterJoanna
I too am in tears. Seeing your little one wheeled into surgery must be so painful. I truly feel for you. Hoping the surgery goes well. Hang on to those mundane moments. Their sense of normalcy will help you through this.
June 13, 2007 | Unregistered CommenterLisa George
Oh, wee baby Liam! I'm also near crying, just thinking about what you must be going through. Sending all the best wishes and thoughts your way.
June 13, 2007 | Unregistered Commenteranna
God, I'm sorry. I can't even imagine. Sending good wishes and thoughts your way.
June 13, 2007 | Unregistered CommenterAndrea
Gosh you must be so scared. Handing your child over to a surgeon is one of the worst feelings in the world -

Wishing you the best and marveling at how articulate you can be. The slowing down to see a car crash analogy is right on. I often feel a bit guilty about reading your blog - I can relate in so many ways - but it's your crisis - not mine.

Again - hoping for positive news.
June 13, 2007 | Unregistered Commentermaria
O.k so maybe you'll think I'm being a total jerk (and I hope you are alright with swears) but all I want to do when I read your blog is scream WHAT THE FUCK! at the top of my lungs. I can't believe they have to go through so much so young and that you (as young, wonderful parents) have to go through so much. I'm going to punch the wall and throw stuff for you.
June 13, 2007 | Unregistered CommenterRachael
I too will be thinking about you and the boys today.I've never felt like reading your posts was anything akin to a car crash. I hate that you have to deal with these things, but I've always felt such hope from you. Even when you've shared the darkest moments, your strength comes through.Many hugs and kisses to Liam.
June 13, 2007 | Unregistered CommenterMeredith
My little sister has lived with that shunt for 26 years now. In fact she was one of the test patients for the device.I'm so very sorry that he has this added complication thrown his way. You are all in my thoughts today.
June 13, 2007 | Unregistered CommenterJessica
I remember that resentment with Anna. Acutely. When hospitals and chemo centers and doctors offices and emergency rooms became normal. When I could make jokes and exchange CDs with the radiation techs. Now that world seems foreign again when I take my oldest in for a broken pinky. But the resentment isn't far below the surface.

I suppose normal will readjust for you to fit your situation at some point, Kate. From more than 2 years since my own personal earthquake I can say that new-normal still sucks really, really hard sometimes. Especially coming out of sweet, old-normal dreams. But it's mostly... normal.
June 13, 2007 | Unregistered CommenterJason Dufair
Oh Liam. Oh Kate. I am so sorry.
June 13, 2007 | Unregistered CommenterYatima
Like KYouell, I always feared the anesthesia (rightly or wrongly). I told the anesthesiologist every time, face to face, "Don't screw up. Do your best possible job." For some reason, it made me feel one tiny increment better.

Thinking of you and wishing for the very, very best outcomes for every single one of you.
June 13, 2007 | Unregistered CommenterKathy Ramsey
**heartbroken**
June 13, 2007 | Unregistered CommenterSupermom73

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